Archives for the ‘General Information’ Category

27 Juli Last Day in Deutschland

By Diane Pearl • Jul 28th, 2010 • Category: General Information

So this is it…tears of sadness, tears of joy fall from the sky as the rain still beats against the window. Today we will say good bye as my parents did 65 years ago. Yesterday we visited Massenbach, my dad’s home town to take pictures of his old house and the well in front I [...]



How You Can Make a Difference

By Diane • Jun 5th, 2008 • Category: General Information

Save-A-Life!!!

We continure our efforts to raise awareness and funds for Fanconi anemia (www.fanconi.org) and support the National Marrow Donor Program (www.marrow.org) adding over 100,000 potential matches to date. Every day over 6,000 men, women and children desperately search the NMDP Registry for a matching bone marrow donor. Much work needs to be done. Your support [...]



B Positive, Inc

By Diane • Mar 4th, 2008 • Category: General Information

 
B Positive is the motto of Alexandra and Matt Pearl who were diagnosed with Fanconi anemia in 2001. Their B+ blood type and hopeful spirits spark the founding of B Positive, Inc. The 501c3 organization has several key goals:
 
v  Helping find a cure for Fanconi anemia
v  Raising money for FA research
v  Increasing awareness and registration [...]