Upcoming Events

KICK FA! 2nd Annual International FA Day, May 1, 2011 donate at fanconi.org

Dear Family, Friends and Neighbors,               Alexandra and I are kicking off the Second Annual KICK FA Fundraiser in honor of International Fanconi Anemia Day. Thanks to everyone who helped us raise $22,000 last year, far exceeding our goal. Once again, I simply ask, “WWYD? What would you do if it were you or your child?” [...]


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What is your purpose?»

January 27, 2012 Matt is home sick today fighting a cold that probably came from me…ugh. He is resting while Alexandra is running around from class to class at school getting his work. She would HATE for him to get behind…ha. Just what he needs; two mothers! My mood is unusually good as January is not [...]

Merry Christmas!»

The Secret of Christmas By Diane Pearl December 21, 2011   The same note you write in a Christmas card Will not cure the fight if your heart is hard The sweet sound of carols playing out of tune Are over with a new year replacing them soon   The presents wrapped perfectly are quickly [...]

Understanding complexity will bring you simplicity…»

We had a very quiet Thanksgiving with just the five family; Mark, me, Austin, Alexandra and Matt. Of course, Rosie the best yellow lab in the world sat begging for turkey and salivated for leftovers with unattractive table drooling. She was nicely excused…I guess since two Fanconi anemia diagnosis’ 11 years  ago this Christmas, we have [...]

At-t-i-tude…»

I was asked to take a test and I failed completely. It was to go for one day not judging others but seeking their soul and seeing their spirits. For example, I saw a fat man smoking a cigar and my feeble mind screamed “idiot.” Shoot! I bet he is a very nice person. I saw [...]

Do not work hard to do easy tasks…»

My thoughts today: I hope you do not work hard to do easy things yet through faith and hope find it easier to do harder things. Make sense? We have been on a sports roll with the wild baseball of the St. Louis Cardinals in the World Series. night after night of electric excitement; not knowing [...]